During the last few weeks I didn't feel very well. I was still very tired and got some arthritis which was very annoying and painful sometimes. This was going on for more than a month and last monday the doctor said it was due to the GVHD (graft-versus-host disease, you can find it on wikipedia). So they decided to restart the steroids... and of course I feel much better, actually I feel really well since Tuesday. But I'd rather stop taking these pills, because the long-term side effects can be even worse. So, it's a bit double.
Since September I am following a recovery program at the hospital, especially for (ex-)patients with hematologic diseases. This is very helpful. We do exercises for the muscles, flexibility of the joints and endurance, and I really need it. Before we started, I did a cardiac stress test, and apparently, I had only 49% of the strength of an average 26 year old guy... I produced 160 watt, whereas a few years ago I know I could produce 300. (this has nothing to do with the 49%, because then you might think I was already weaker than the average guy before :) the calculation is a bit more complicated)
So, you are informed again. I have the feeling that it's hard for a lot of people to understand how I feel. This recovery takes a very long time. I can do a lot of things, I do look alright, and for some people that's a reason to think that I'm my old self again. But it's not. I'm doing alright, I'm about 70% of my old self (at this moment) and it could take some more months to get back the last 30%.
About my uncle, he had a very beautiful and emotional funeral. I played two songs with my brother. It's strange to know that he will never read this blog anymore, because he was one of my most faithful readers. Well, I'm not much of a believer but maybe... never say never.
