Dear readers, Today I called one of the doctors for the results of the scan, and what I feared seems to be confirmed. On both scans (CT and PET) they could see a little growth of the disease. Because I already expected this, I'm not much more dissapointed, but it now seems a big waiste of time and energy, but off course, the doctors needed to be absolutely sure. So, new treatment on monday! Hurray!! Let's see how much more I can get! ... Physically I'm doing fine, if this humongous bubble at my neck wasn't reminding me of my disease all the time, I would be able to forget it sometimes. I try to think about how happy I would/will be if/when I see the next treatment can make it shrink. And I mean shrink forever, because the steroids I get at the beginning of each treatment make the bubble much smaller, but untill now, it always grew back a little bigger, quite misleading... Greetings, Harmen
Dear readers, I didn't go to Italy at last, the doctors wanted me back today and between friday and today there was just not enough time, because we would have gone by car. So me and my brother went to Strasbourg and the Alsace region for three days. Very nice! I coudn't really forget everything, but the changing of scenery did me good. One thing made me worried the last days. The swollen lymphnode (lymfeklier) at my neck/shoulder is getting very big, maybe bigger than ever. This morning at the hospital, my blood was alright, but I asked the doctor about the lymphnode. He said that they prefer to see that the lymphnode gets smaller, but they can not be sure without the PET/CT-scan. However, he spoke about a new treatment starting on monday. I'm not as dissapointed as one might think, because actually I never really believed in this treatment. I still have a lot more hope than I had with the non-Hodgkin diagnosis. I think there are still enough other possibly curing treatments. Of course, I am living with the same uncertainty for 5 and a half months now, and that's sometimes quite exhausting. That's why I really appreciate your concern and support, I can really use it! Thank you very much! Greetings, Harmen
