Dad had an epilepsy ceisure again last night. Last one he had was almost a year ago. His eyesight that got affected by the cerebral hemorrhage that started it all, was just improved enough that he could start driving again somewhere in december. Dad was excited for a whole week. And now he can't drive for another whole year. It's going to be a major slap in the face for him.
It's stress, definitely stress this time. It's quite busy for accountants and he's doing all that work by himself. He's been working so much for the past month to get everything done. And then there's the baby. Dad just became a granddaddy. It's something he's been waiting for for years now and it finally happened. I think all the emotions, the good and the bad, have gotten to him again. I saw it coming last wednessday when the baby was born. Dad was awefully quiet in the hospital. No one really noticed cause of all the joy and happiness around, but I made sure I kept an eye on him. The few days after that he was still a bit blown away, but he seemed to be recovering from it all. Yesterday I wasn't really worrying anymore. But it did strike me that wednessday though, how easily he get's affected by things these days and how hard it is for us to detect any possible stressfactor. When even good events can be a trigger. Those never ring an alarmbell. Of course the mainfactor was a stressfull workingperiod.
When mum got home she did the usual. Running around cleaning up, trying to get back in control of things. But she isn't and she's dead scared. Another side of mum I'm slowly beginning to know. It makes me want to be able to talk to her. I only talk to mum in a practical way. We seem to be unable to chitchat, to chew the fat. I've tried before. When we're shopping alone, I try to pay attention to her and to talk, but it never seems to work. I'm not sure if she feels the need to talk to me. And I usually don't feel the need to talk to her. But it's on occasions like these that I wished I could say something to her that went through, that meant something. Not because I want to be the important person that saves the day. I'm scared that she needs someone when no one's there. She's got a good friend and she's got my sister, but I'm around when mum has the hardest time. That's when she's at home unable to find something to do. During the day she goes to see dad, she arranges things with the hospital, with his clients and so on. That's when she can pop in and talk to her friend or my sister. When she has to go home at the end of the day she's on her own. And there's only that much cleaning you can do. I know she hates being on her own. She's said it once. Last year she was alone with dad when I was on holiday and my brother stayed at his girlfriends. It made her feel a bit sad, she said. And she's said she couldn't sleep on her own in her bed, last time dad was in the hospital. So mum was very alone yesterday. I asked about dad when she got back (I couldn't get there last night), and after that I thought it was better if I didn't try to talk to her. I think she prefers that. But I kept her company. We watched telly together and I tried staying up, but I was dead tired from the night before, so I dozed off quite a few times. I think I did the best I could do. But I wish I could do more for her. She's my mum.
A Spot Of Bother, Mark Haddon's latest book, is about George, Jean, Katie and Jamie. Each have their own problems to face, but none of them can go around everyone else's. George suffers from cancer. At least he thinks he suffers from cancer. What he mistakesd for cancer appears to be eczema, which can be cured by simply putting some creme on. However, knowing that doesn't stop George from having panicattacks and a depression. He fears the end is near. Jean is George's wife. Her marriage is not what she wished it was and so one day she finds herself in bed with another man. She cares for George, but it just doesn't do anymore. She wants more and maybe it's time she took it. But what about George? Katie is the feisty daughter, about to marry a man who will take care of her and her kid. Whether she really loves Ray, she isn't really sure. Next to love, there might be other explanations for why she is marrying Ray. Is it because he get's along with Jacob and he can fix anything on the planet or is it because her parents tell her not to? Jamie is Katie's gay brother. He get's dumped by his boyfriend when he is tired of Jamie remaining single in their relationship. That puts Jamie at the start of a struggle. Where will he end up if he doesn't change?
So those are their own problems. On top of that are everyone else's. Both of the children will have to coope when the roles are turned around... a father that is expected to deal with his own problems cries out on their shoulder and they need to tell mum off for having an affair. Both the parents, especially Jean, have to deal with a daughter who is about to marry someone they don't like and probably no one - including Katie- loves and a son that has a "collegue" he's very close with. And all of them have a past together, like every family has.
Mark Haddon is a very gifted author. All the problems in the relationships in and out the family are made so clear in subtles ways. It takes a while before you really get into it, you have to get to know the characters at first, but it's worthwhile. Check the website out for extracts. It might lead to an exciting new read. http://www.randomhouse.co.uk/minisites/aspotofbother/
Only 12 months ago my dad had a cerebral hemorrhage. It was very big and he was very, very lucky that it was on a spot where it didn't do much harm. Normally a hemorrhage of that size would lead to paralysis of a big part of the body or death. My dad only suffered minimal damage. He lost a quarter of his eyesight of each eye. Other than that he has a bit more problems with oriëntation and concentration. But nothing you'd really notice if you didn't know him before. After that they said he'd probably never be able to drive again. This because of his eyes. Very frustrating for him. He loved the freedom it gave him. He also wasn't allowed to work for a certain amount of time. In september (when I was on holiday even) he suddenly had to be brought to the hospital. When my dad started to act weird at home, my mum got worried and called the ambulance. She left to the hospital just before the ambulance drove away. When she got to the hospital the ambulance hadn't arrived yet, but she saw the "MUG" drive away. This was for my dad. Eventhough it's only 5 kilometers from our house to the hospital. At one point the ambulance had to stop and call them to come and take over. I got a phonecall from mum saying that my dad was in the hospital and that this time he wouldn't be so lucky. Later I heared that he showed all the signs of a cerebral hemorrhage at the core of the brain. There would be no chance of him getting out of this without a paralysis of most of the body, if he would survive at all. We were very relieved to hear that this was not the case. My dad had his first epilepsy attack. This was a status epilepticus though. He would've died if there wasn't anyone around to call in for help. He was again lucky. All the doctors were surprised by the luck my dad has had so far. He could've died twice. When he had the cerebral hemorrhage no one was around and dad himself couldn't do much. He had lost his coördination of his eyes and couldn't see any telephonenumber completely. He, to his own surprise, could remember his mum's number and phoned her to tell her to warn someone. And when he had his first epilepsy attack my mum was around. Only the next day he would get permission to work again from the doctor. He obviously didn't get it after that.
Yesterday my dad had his second epilepsyattack. They went to taste the menu for my sister's wedding and he had a little bit of wine. They had said last time that the attack had to be caused by stress. He was feeling quite alright these days, he says himself. We think the wine escalated everything. I phoned my mum to tell her what time I had to be in Sint Niklaas the next day. Dad was being very weird when he picked that phone up. He said that it started earlier, but he hadn't said anything about it yet. He was getting scared though. My mum luckily noticed and called my sister. We both were in our pyjama's. We dressed ourself and actually got ready very calm and in control. I wasn't too worried. I knew it was an epileptic attack, it had to be. I also knew we read the signs a lot earlier and we would be in the hospital on time where they can help him. I was very sure that he'd be alright. We got him in the car and into the hospital. He just stared in front of him and looked absent the whole time. In the hospital they did some tests. He still hadn't had an attack. When my mum and the doctor were talking, my sister and I kept looking at dad. And suddenly he got his first attack that evening. I had to walk away from there. I couldn't handle seeing it. I didn't cry, I left before I could get to that. I just focused on calling my brothers and just thought about what I knew about epilepsy. That wasn't a lot really. But the things I knew were enough. I knew a lot of people have epilepsy. I even saw a dog helping a person with epilepsy. If a dog can help, surely doctors can. When I went back inside, it was over. He had a second attack and then a third one after me and my sister left. Between the attacks my dad was just starring in front of him or he was looking at us. It was horrible to see. I didn't know wheter he was listening to the things I said or not. I didn't know if all that got through. Today my dad said that he heard everything. He was mostly focussing on trying to reply. But he just couldn't. I think he only reacted twice to the things I said to him. Just something that came close to a smile when I was joking around a bit. I didn't want to look too scared, so I made little jokes. I thought that if I looked too worried, he'd feel bad. Cause parents do, right? When their kids feel desperate and horrible, they want to do something about it. They can't stand the look on their face. Well I know my dad will feel that horrible. I know my mum couldn't pull of a smile, my sister couldn't either and my brother... he just kept quiet the whole time. He didn't say a single thing. So I did. I kept strong and possitive. Took over my mum's thing.What happened to dad really broke her. It looks like she has a harder time being strong. Cause with this she is on her own.
I saw dad today. He can laugh with my little jokes now. Feels good to have someone laughing with my jokes.
